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What to Do after Diagnosis
Simple first steps when everything feels overhwelming
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For Parents
Grief, guilt, overwhelm, hope...and reminders you're not alone.
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Read our Story
How we got here, what we learned, and why this community exists
Early Signs & Real Life
Every child is different. These were the pieces of our experience - moments we questioned, things we missed, and things we understand differently now.
Behaviours We Noticed
Every child is different. These are simply some of the things we noticed looking back — the small moments that seemed random at the time, but eventually helped us understand Luca better. Some signs were obvious. Most weren’t.
Before Diagnoses (Diagnosed at 18 Months):
• Playing with toys differently than we expected (spinning everything)
• Loving movement — jumping, spinning, climbing, running
• Watching things move over and over again
• Hand flapping during excitement or joy
•Becoming deeply focused on certain activities or interests
•Seeming happiest in movement, repetition, or predictability
• Exhaustion after sensory seeking or big movement days
Some looked quirky.
Some looked like personality.
Some looked like phases.
Some just felt… different.
Looking back, they were pieces of a bigger picture.
The biggest thing we’ve learned:
These behaviors weren’t “bad.”
They weren’t things that needed fixing.
Often they were communication.
Joy.
Comfort.
Regulation.
A way of experiencing the world differently.
If you’re here because you’re wondering, worried, overwhelmed, or simply curious:
You are not alone.
And whatever your journey looks like, your child is still your child — worthy, capable, and deeply lovable exactly as they are. 🤍
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